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Frigg [userpic]

Of course!

September 2nd, 2013 (04:55 pm)

The day after - or maybe even the same day as I said yes to Gilenya, the first PML (Progressive Multifocal Leukoencephalopathy) has been connected with Gilenya.

The PML risk was one of the reasons I did not want to take Tysabri, even though I am JC virus negative (the virus that causes PML).

I'll go ahead with Gilenya, but talk to my neurologist about regular testing for JC virus, so that I can stop the medication if I get the virus. Approx. 50% of the general population has the JC virus, but it's not a problem unless you get AIDS or have to take immunorepressive medication. I know you cannot think of it this way, but I'd rather wait to use my JC virus card for something more serious, such as if my MS becomes aggressive and I need to take Tysabri - or if I ever need chemotheraphy at any point.

The PML risk is probably minimal, though, even if I had tested positive for JC virus. Up until now, there hasn't even been required JC virus testing for Gilenya, and many people with JC virus have picked Gilenya because it was considered the safe option for them. There are currently 71.000 patients taking Gilenya, so it's one confirmed PML case out of 71.000 users, which equals 0,0014%.

Still, PML is nasty. Very nasty. I prefer a 0,0000%

Frigg [userpic]

Snippet Sunday

December 30th, 2012 (09:27 pm)

This is getting embarassing, but no snippet from me this week. All creative work has been limited to research and short story ideas. It's necessary, but it's not tangible yet.

Frigg [userpic]

LJ Privacy Update

September 12th, 2010 (01:40 pm)

So, apparently the solution to this whole mess is that LJ will prevent comment re-posts and linking to locked posts, but they will not add a feature so that I can disable all re-posting from my journal to Twitter and Facebook.

The solution is obviously not ideal, and I am not happy with it, yet still not upset enough to move to Dreamwidth.

What this means, is that this will be my last open entry. All entries from now on will be locked.
I can see there were a few writers following this journal that I haven't added to my friends' list. You have now been added. :)

For people not on my friends' list. I am really sorry about the inconvenience. I will be checking my LJ friends' list reguarly or alternately send me a message here after you've added me, so that I can add you. If you think I might be clueless as to who you are, then remember to give me a hint, and bear in mind that my memory is like a sieve when it comes to names and that I am a hopeless twit at connecting LJ-handles with their corresponding real life person. navicat can attest to that. She's a dear friend, whom I really, really like, yet it took months for me to realize that the awesome writer I was chatting to online and the awesome writer whose journal I was reading was one and the same person. ;)

It took me even longer not to envision her as a grumpy white cat in my mind. :p

Frigg [userpic]


September 11th, 2010 (03:18 pm)

Today is the birthday of my very special friend and sick pea extraordinaire: mnfaure!

Frigg [userpic]

Word-metre September.

September 1st, 2010 (03:28 pm)

Aehmmm August wasn't something to write home about. Real life became too distracting not once but twice and I'm a twit at getting back into a writing rhythm:


4732 / 23000 (20.57%)

Still better than nothing, and as I've said before, no pressure, no guilt monkey.

Anyway, here's for a better September:

0 / 22000 (0.00%)

Frigg [userpic]

Pingbacks-Twitter- Facebook

September 1st, 2010 (09:58 am)

Since I am determined to keep my LJ and Facebook separate, I have disabled pingbacks.

I'm not sure if this will influence the link to my blog that some of you have on your own blogs, if so, I apologize.

RE-EDIT: I'm getting all confused, but bottom line: IF you find that you can repost your comments in my blog to Facebook and Twitter, then please don't.

EDIT EDIT: Okay, this new repost feature sucks big time. HUGE VIOLATION OF PRIVACY. I am just waiting for LJ to wake up and see the light.

Frigg [userpic]

This and that

August 31st, 2010 (12:47 pm)


C and I are just not good at dates.

02-08-02 (yes, we picked that date partially because it would be easier to remember) was the day of our wedding party in Denmark.

09-08-98 was the day we "met" on ICQ.

...and we forgot both dates! This weekend C vaguely remembered something about "didn't we meet online in August?" and then I remembered the party in August.

After a bit of head-smacking, we did a little "Happy Anniversary" song, based on Happy Birthday and then went out to work in the garden. Yes, we're idjits.

Our real wedding anniversary is in November. 09-11-01 or 911, as we like to say. :p

Again a bunch of easy numbers to remember, but will we?


Cat and Dogs:

*Orlando and Lia are playing*
Lia: *gets too rough*
Orlando: *whacks*
Lia: YELP! *RUNS to May on the couch, jumps onto her lap and wraps front paws around her neck*
May: Oooomp!
Lia: Orlando was MEAN to me!
May: *wonders if she has pets or toddlers*



May: I spoke to your mother. She said you were crazy and I pointed out that you were her son. She liked that a lot, I got a plus point.
C: You are still waaaaay behind.
May: I know. Should we move to Cyprus and make lots of babies?
C: Nope, I'm not going to help you. You have to earn your plus points yourself.

Frigg [userpic]

Diiiidi di di didididi diiiiidi

August 29th, 2010 (11:50 am)

*me humming Morning Mood*

All is well again. Suburbia is looking less and less attractive by the minute. The wood furnace is fixed with new, smooth-running parts, and we have hot water again. Christian is working the fields and although it is noisy, it is also fascinating to watch the big machines and ponder about how they work. I also love seeing the huge rolls of straw on the fiels. There's something about them that just feels right.

Also, berry season! The wild blackberry bush is being generous this year, still not enough to make jam, but enough for blackberries with cream and milk. The wasps like them as well, but with calm movements, mutual respect and a light touch when picking berries, this isn't a problem. I accidentally plucked a wasp yesterday, and she was sweet about it. Peace and love, live and let live and all that. ;)

And the weather is my kind of weather! Cool, but sunny. I'm getting enough sleep at night without freezing or getting drenched when outside. Perfect.

Frigg [userpic]

It's just one of these weeks.

August 26th, 2010 (05:13 pm)

So woke up with no water, then decided to send in my VAT statements, which turned into an epic internet tax-system fail and a half hour telephone on-hold marathon of Kafka-ish format.

The good news is that the water is back, C will turn on the wood pellet furnace when he comes home and I'll probably have a warm shower tonight! Had to boil water and wash in the sink yesterday, which wasn't particularly enjoyable, but at least I'm clean.

Frigg [userpic]

Country living - Part Deux

August 26th, 2010 (12:03 pm)

Woke up to no water and a cat that had vomitted all over the place.

I knew the latter was going to happen because Murph threw up a bit yesterday. He always does this with hair balls. Once every 4-6 months, he'll throw up a giant hairball, and this is preceeded by many small initial gags. So when Murph starts to vomit, we know it's not over till the hairball is out. water. This time it has nothing to do with country living, which I would have known, had I bothered to read the announcements in the local paper. Of course I did not bother, so the first thing I did was to go around to check water pressure, pumps, pipes and what have you. Only then did I go to the water company's webpage to check for announcements and the page referred me to the local paper and tadaaa, not our system, but they are doing checks and will shut of the water in our area sporadically for about 2 hours at a time for the next 1-2 weeks.

Luckily we have water outside. It used to be the house's source of drinking water, but it has not been quality checked for the past 6-7 years, so I'd better not drink it. It'll be fine everything else, though. At least I can wash the floor.

C started the dishwasher this morning, so that should be interesting.

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